Ugh.
To make things short....
Doc wanted to run some tests to see if a respiratory infection could be a partial cause for failing on the CPAP. Coming back positive, but they don't know for what yet. The culture should come back sometime Monday. So she had to get another IV for the antibiotics. Not fun to watch.
Bronchoscope still planned for later this week. Under full anesthesia.
And 5 freaking shots today. Even more fun to watch! Joy oh joy.
Sunday, May 31, 2009
Friday, May 29, 2009
Today sucks
Reintubated. I'm pretty much devastated. She was working really hard, and the nurses were needing to physically stimulate her to get her to come out of her bradies and desats. When the neonate reintubated her, he noticed that there was a narrowing of her windpipe just below her vocal cords. Could be mucus, could be scar tissue.
Sooooooo....that means she has to go under anesthesia AGAIN so the ENT can look and see what the deal is. And if it is scar tissue, it could lead to another surgery. But we won't know much until after the bronchioscope, which will probably be some time next week. At least the ENTs that they use are some good ones, not the quacks that we used to deal with for Jameson.
And I found all this out while at my dad's retirement party. So I pretty much managed to ruin everyone else's day too. Yay me.
Sooooooo....that means she has to go under anesthesia AGAIN so the ENT can look and see what the deal is. And if it is scar tissue, it could lead to another surgery. But we won't know much until after the bronchioscope, which will probably be some time next week. At least the ENTs that they use are some good ones, not the quacks that we used to deal with for Jameson.
And I found all this out while at my dad's retirement party. So I pretty much managed to ruin everyone else's day too. Yay me.
Thursday, May 28, 2009
May 28
Geez, I feel like I'm being attacked by a vampire again. 3 more vials of blood given to my doc today. And that's after the 4 from yesterday. At least, if I'm going to be attacked like this, can someone make the vamp look like E.C? :)
Jaime is a crazy kid. As ever. Tried to help Nana with her ice cream sandwich. Too cute.
Sent my parents to the neighbor's garage sale this afternoon. $40 for a white crib. NICE! Too good to pass up, so at least Maryn has a place to sleep once we get to take her home. And yes, we checked the slats and all.
And the Princess was put on CPAP this afternoon. Around 2:15. She did pretty well with the switch. Now if she would just leave the prongs in her nose. About ever 15 minutes she manages to wiggle at least one of them out. When they were in though, her sats were still pretty good. The neonate is crossing his fingers. ME TOO!
Jaime is a crazy kid. As ever. Tried to help Nana with her ice cream sandwich. Too cute.
Sent my parents to the neighbor's garage sale this afternoon. $40 for a white crib. NICE! Too good to pass up, so at least Maryn has a place to sleep once we get to take her home. And yes, we checked the slats and all.
And the Princess was put on CPAP this afternoon. Around 2:15. She did pretty well with the switch. Now if she would just leave the prongs in her nose. About ever 15 minutes she manages to wiggle at least one of them out. When they were in though, her sats were still pretty good. The neonate is crossing his fingers. ME TOO!
Wednesday, May 27, 2009
ARGGGGGH!
Ok, so I'm trying to stay sane. But this just sucks. I've been fighting panic attacks for a few hours now, and news, although not that bad or anything, isn't helping. It feels like a cross between being terribly nervous, wound up on high levels of caffeine, eating rocks, plus being stepped on by an elephant. But not in the good way, like it was when I was young and dumb.
Found out that Maryn's caffeine level was on the low side, so no CPAP today. They bolused her and increased her daily dose in the hopes of trying it Thursday. Of course, she wasn't cooperating. She bradied at least 2 times that required bagging. Heart rate in the 60s and she wouldn't/couldn't get it back up on her own. Yeah, that doesn't help. Now tonight, come to find out that her head circumference went up a full 1/2 cm. The goal is 1 cm per WEEK. Oy. So now I'm worried that she needs to have her reservoir tapped again, and that they aren't going to notice or do it until after they try to get her on CPAP. And she WILL brady when they tap. And I don't know what nurse will have her Thursday - I know one of our favorites is definitely off. I wish I could just live at the hospital. With Jaime.
Found out that Maryn's caffeine level was on the low side, so no CPAP today. They bolused her and increased her daily dose in the hopes of trying it Thursday. Of course, she wasn't cooperating. She bradied at least 2 times that required bagging. Heart rate in the 60s and she wouldn't/couldn't get it back up on her own. Yeah, that doesn't help. Now tonight, come to find out that her head circumference went up a full 1/2 cm. The goal is 1 cm per WEEK. Oy. So now I'm worried that she needs to have her reservoir tapped again, and that they aren't going to notice or do it until after they try to get her on CPAP. And she WILL brady when they tap. And I don't know what nurse will have her Thursday - I know one of our favorites is definitely off. I wish I could just live at the hospital. With Jaime.
May 27
We have a 3 pounder! When she got weighed Monday night, she was up to 1350 grams, so 3 pounds exactly. And she actually gained one ounce last night too. Her cheeks are actually starting to get a little chub on them. Although you couldn't tell from the rest of her. Darn princess has absolutely NO butt, and her arms and legs are still the size of Barbie's. I got enough butt to share with both my kids, but NOOOOOOOOOO.
Today we may be trying CPAP again. Just waiting to hear results from her caffeine labs from yesterday before the decision is made.
Jaime is still a monkey. He'll stand and bounce on the couch, then literally launch himself face-first onto it. Then he laughs uncontrollably. It's so cute. Until he landed on me yesterday, hitting the spot where my PICC line was. Not so much fun for mommy.
Off to get ready for appointments, then scrapbooking and seeing my princess. Hey, anyone have good recommendations for good books? I'm about to finish the Twilight series and will need something to help me out of the vamp stupor.
Today we may be trying CPAP again. Just waiting to hear results from her caffeine labs from yesterday before the decision is made.
Jaime is still a monkey. He'll stand and bounce on the couch, then literally launch himself face-first onto it. Then he laughs uncontrollably. It's so cute. Until he landed on me yesterday, hitting the spot where my PICC line was. Not so much fun for mommy.
Off to get ready for appointments, then scrapbooking and seeing my princess. Hey, anyone have good recommendations for good books? I'm about to finish the Twilight series and will need something to help me out of the vamp stupor.
Friday, May 22, 2009
Yeah, yeah, yeah
Just for you Heather! :) Even though you already know most of this stuff since I talked to you yesterday!
Ok, so I know I didn't update for several days. 20 lashes with a wet noodle. I was in a bummer mood, all down and dumpy. So I didn't feel like updating. Nothing with Maryn or Jaime. Both are doing well. And I think I'm doing better.
Jaime is a monkey. Jumping on everything and everyone. Happy as a clam. He recently has discovered the joy of "stepping" to the window to check things out outside.
Maryn has officially gained one full pound since she was born. 1270 grams. 2 pounds 12 ounces. She's still vented, but they did that on purpose. Trying to give her a little bit of a break this week. If she does well over the long weekend, we may have another (and hopefully FINAL) try at CPAP as early as Tuesday.
Off the topic. At least of my kids. There is a family in the NICU that could use prayers too. I know prayers can work miracles because look what y'all have done for Maryn! Logan is just down the hall. He's the cutest, chubbiest thing. But he has some liver/intestinal issues. And his parents are 2+ hours away. They took off as much time as they could, but they had to go home. They only get to see him on Wednesdays and weekends. I can't even imagine. So if you wouldn't mind keeping him and his family in your prayers as well.
Ok, so I know I didn't update for several days. 20 lashes with a wet noodle. I was in a bummer mood, all down and dumpy. So I didn't feel like updating. Nothing with Maryn or Jaime. Both are doing well. And I think I'm doing better.
Jaime is a monkey. Jumping on everything and everyone. Happy as a clam. He recently has discovered the joy of "stepping" to the window to check things out outside.
Maryn has officially gained one full pound since she was born. 1270 grams. 2 pounds 12 ounces. She's still vented, but they did that on purpose. Trying to give her a little bit of a break this week. If she does well over the long weekend, we may have another (and hopefully FINAL) try at CPAP as early as Tuesday.
Off the topic. At least of my kids. There is a family in the NICU that could use prayers too. I know prayers can work miracles because look what y'all have done for Maryn! Logan is just down the hall. He's the cutest, chubbiest thing. But he has some liver/intestinal issues. And his parents are 2+ hours away. They took off as much time as they could, but they had to go home. They only get to see him on Wednesdays and weekends. I can't even imagine. So if you wouldn't mind keeping him and his family in your prayers as well.
Sunday, May 17, 2009
May 17
Ok. I'm tired, so I'm gonna try to make this quick and to the point.
1. a little blood in stool, or so they thought. 2 xrays showed nothing, but they are watching just to make sure. Pray for nothing.
2. still on vent. Satting pretty well with low support levels.
3. Still on diuretic, thus also still on sodium and potassium.
4. Gaining weight a little at a time. She's 2lbs 8oz right now (1150 grams). And on full bolus feeds.
5. bath time today with a princess rubber ducky. she then proceded to poop in the tub.
6. Jaime is a serious mexican jumping bean. And wanted to throw his train in church.
7. I still have a cold. Maybe brandy will clear it up.
1. a little blood in stool, or so they thought. 2 xrays showed nothing, but they are watching just to make sure. Pray for nothing.
2. still on vent. Satting pretty well with low support levels.
3. Still on diuretic, thus also still on sodium and potassium.
4. Gaining weight a little at a time. She's 2lbs 8oz right now (1150 grams). And on full bolus feeds.
5. bath time today with a princess rubber ducky. she then proceded to poop in the tub.
6. Jaime is a serious mexican jumping bean. And wanted to throw his train in church.
7. I still have a cold. Maybe brandy will clear it up.
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